By Dr Alyson Huntley, Senior Research Fellow in Evidence Synthesis, Centre for Academic Primary Care, University of Bristol
World Heart Day on 29 September 2022 aims to inform people that cardiovascular disease, including heart failure and stroke, is the world’s leading cause of death, claiming 18.6 million lives each year. It also aims to highlight the actions that individuals can take to prevent and control heart disease. Alyson Huntley describes how researchers at the Centre for Academic Primary Care are refocusing priorities to ensure that the needs of people living with heart failure are at the centre of their work.
We aim to put people with heart failure at the centre of our research. A recent collaborative project with other universities highlighted the unmet needs of people living with heart failure. The priority setting process brought clinicians, patients and families/carers together on an equal footing to … Read more
by Dr Rachel Johnson
Clinical Research Fellow
Centre for Academic Primary Care
This week sees the launch of the James Lind Alliance Advanced Heart Failure Priority Setting Partnership Survey to gather research ideas from those living or working with advanced heart failure.
The clinical academic’s view
When, alongside clinical academic colleagues, I began to think about setting up a process to establish the top research priorities for heart failure, I was intrigued by the thought that I had no idea what people living with heart failure would choose as their priorities.
As a doctor interested in heart disease, I have worked with many people who have heart failure. I feel I have a good sense of the medical aspects of the condition, and, to some extent, the patient experience. And yet, when I thought about what patients and their families might identify as the main problems that … Read more