by Dr Rachel Johnson
Clinical Research Fellow
Centre for Academic Primary Care
@rjohnsonridd

 

This week sees the launch of the James Lind Alliance Advanced Heart Failure Priority Setting Partnership Survey to gather research ideas from those living or working with advanced heart failure.

The clinical academic’s view

When, alongside clinical academic colleagues, I began to think about setting up a process to establish the top research priorities for heart failure, I was intrigued by the thought that I had no idea what people living with heart failure would choose as their priorities.

As a doctor interested in heart disease, I have worked with many people who have heart failure. I feel I have a good sense of the medical aspects of the condition, and, to some extent, the patient experience. And yet, when I thought about what patients and their families might identify as the main problems that … Read more